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Our Favorite Things.

3/21/2016

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One of our favorite movies to watch was Brother Sun, Sister Moon which is the story of St. Francis of Assisi. Every time I watched it, the thought that St. Francis had suffered a brain injury always crossed my mind. At that time, the effects of a brain injury was probably not even known. The other favorite movie was Dragon, the Bruce Lee story where it shows his life journey including his full recovery through therapies and workouts after suffering a severe back injury.

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David loved to see Jorge every time he showed up. I would love to hear the details of Fernando back home and the dogs, the house, and our church community. I would love to laugh at his same jokes or listen to the music he would play and sing for David.
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I knew that for the time Jorge was in town, I didn’t have to worry about what to eat because he always found the right things to get.

One of Jorge’s favorite places was “El Palacio de los Jugos”. Tia Flor would prepare these fabulous meals especially when Jorge would be in town. Still to this day, he often requests I cook the “Mustard-Spinach baked chicken” she used to prepare.

Once in a while Ana Carolina or Eddy would cook and we would eat together. We also became big fans of “Pollo Tropical”.  It was always special when Jorge was around.


 Tia Flor introduced us to “Dancing with the Stars” and soon it became another favorite thing to do.
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On one of Ana Carolina’s trip back from Orlando, she drove Tony to see David.

Tony had been part of our family for over a decade. He was another son to us and a brother to all our children. They went to school together, worked out together, did martial arts together, break-danced together and grew in their faith together.


They had this special connection, which bestowed on each one of them an implicit brotherhood oath. This type of oath was comforting to the soul because it was genuine and good in intention and value. I wondered once more on David’s reaction and if he would recognize him.
When Tony approached David’s bed, David looked at him and then looked at me and repeated this gesture several times. I could see he had recognized Tony and how seeing David impacted Tony as well.
During the following days David’s speech therapist introduced him to lollipops as part of his swallowing training. As soon as Ana Carolina found out, she immediately ran to buy the biggest bag of lollipops available in every flavor known. This became David’s favorite thing to do.
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Kimberly, David and I watching pictures
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David & Kimberly
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David enjoyed every lollipop.
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Kimberly monitoring David swallowing.
We would take turns giving him lollipops and monitoring his throat making sure he would swallow after each taste. We were thrilled that David could at least taste the lollipops every time he would smell the roommates’ meals.
One of my favorite things was having dinner with Tia Flor and afterwards listening to a few chapters of her book over coffee & hot tea. Tia had written beautiful tales for years, which we all loved to listen to. Her current work was the biography of our family called “Branches, an Epic Biography of a Central American Family”. After partaking in a DNA ancestry blood test, along with her brother, my uncle Carlos, they were able to trace back hundreds of years of family lineage and migration paths of our ancestors. She then, relentlessly committed herself to the undertaking of sharing the history made in the places were our family journeyed leaving a path for future generations to learn of the contributions and experiences they lived. The book was to publish in a couple of months so Tia would be constantly editing, gathering pictures and finalizing details.
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Tia Flor
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One of the entries in my journal at this time simply read:
Jericho – 7th day – 7th month.
I don’t recall the reason I recorded it but as it turned out… it would eventually reveal a unique chain of events that would again show God’s plan, His almighty love and mercy.

Removing the tracheotomy tube turned into a distressing task. My trust in the Lord grew tenfold during this process. David’s speech therapist believed he was ready for the swallowing test but the tube had to be removed first and the opening completely healed before we could ask for the test. Word had it that getting an appointment at the JM Hospital could take months. I was determined to make every effort possible so that all we would need was the authorization from the nursing home doctor to have it done.

I knew God was guiding us so I prayed that we would connect with the right person to answer the phone calls and those processing the requests. I prayed that as God would move the hearts of the people who were in charge of this procedure, they would respond to His voice in order to get this done. At first I got the run around, no one could tell me anything regarding the steps to take and the response was always that I had to wait for a call back. Nurse Wesley got me several phone numbers to bypass the gatekeepers. It was a trying moment. I didn’t give in to the thought that God had abandoned us. I knew His wonders and miracles are done through us so, I continued praying for everyone who in some way or form would get involved.

PictureBarry, Kimberly's dad.
Barry, Kimberly’s dad consulted with his doctor friends to find about the procedure and mentioned it was a quite simple procedure. My uncle Dr. Carlos volunteered to remove it at the nursing home as well as Dr. Sanchez from Jackson MH but the doctor at the home, Dr. St. Vil explained that protocol had to be followed and that meant for them to refer the cases to the hospital and wait. It felt as if for every effort additional obstacles would get in the way. One afternoon I broke in tears. Nurse Rose said that I should not look at the external things but to stay focused on my role. My mom said God would use all the efforts as part of His plan and Kimberly, said that God knew it was tough times but to trust Him because He was in charge. OK – I dried my eyes and got back on the mission.

God moved the hearts of so many beautiful people supporting and walking along with us. Every word they said, every prayer they lifted up and even every cup of coffee shared not only did it help to make the journey bearable but it was as if God was caressing us through each one of them. Even in the waiting, God had a plan.

As we waited for the appointment from the hospital, David continued to show improvement. He started to be able to stay sitting up for 4 hours. His physical therapist, Coach Harold, as we called him, would come to stretch him and as I counted in English, Harold would count in Spanish to help David regain speech memory.

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One evening, Kimberly and Ana Carolina came to see David and we were talking about the trache tube. We watched a video of the removal procedure and we discussed on waiting for a sign. Then as David was being transported back to the room after his shower, CNA Blair told me David had coughed out the tube cap. Ana Carolina, Kimberly and I looked at each other in silence. This was the sign I had mentioned earlier. As I dressed David, the collar Velcro got loose and out came the tracheotomy tube. Still in disbelief of what had occurred, I called the head nurse and the crew came in to check on David.

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The respiratory therapist and head nurse agreed he was breathing 100% and covered the incision.Now we only had to wait 24 hours for it to close.        Mission accomplished!

“Without God... I can’t - but without me... God won’t.” 
(St. Augustine).  We think of all those who respond to the movement of their hearts inspired by the Lord to help accomplish His purpose in His divine plan for each other. We pray that we may never create a delay, an obstacle or block to these blessings by ignoring the calling to do the noble things that are placed in our hearts.

 
(Amos 3:7; 1 John 4:12; John 14:12)

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Prayers answered

3/8/2016

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Kimberly called and told us she would be in Miami for 3 weeks. This was a very special visit.

David and Kimberly met around 2004 at Bayside Hut in Key Biscayne and dated for about 4 years. We all became very close to her. Even though they each went their own separate ways, they remain good friends.

David always kept a special space in his heart for Kimberly.

On the day of the accident, she was flying for summer vacation to her hometown, Trinidad & Tobago. Her flight had a layover in Miami, which allowed David to spend some time with her. After dropping her off at the airport and on his way to work, he called me to share his joy of having been with her and said he would call me back. About 3 hours later, I received the call about his accident instead.

We all knew Kimberly’s visit would be important even if David was still confused and in a daze. I wondered what reactions would he have and if he would remember her at all. I prayed that her presence would spur new connections for David.

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As soon as Kimberly entered the room David watched her come in and as she got closer, he looked intently at her. The way he looked at her was evident that he indeed had recognized her.

Then he started voicing with the Aaaaaaah like never before. I cried with happiness because in my heart, that was the reaction I had hoped for.

As she spoke to David, he saw she was wearing the ring he had given to her while they dated. It filled my heart with joy. For the first time he alluded to an event from his memory. I wondered what else he would remember.


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Kimberly shared pictures and memories.
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We spent the day sharing and talking about all that had occurred, and next steps.

The next day, after mass the priest announced about the candles to support the grotto of the Virgin of Fatima located behind the church. I couldn’t believe what I had heard. Not only was the church named Saint Michael the Archangel, it also had a grotto dedicated to the apparitions of the Virgin Mary of Fatima, in Portugal.  On the Sunday before David’s accident - where we celebrated Mothers Day together, he had invited his grandmother to Portugal to visit the grotto. David had a special love for Our Lady of Fatima. You can imagine my joy.   Another sign – I went and prayed.
Picturehttps://en.wikipedia.org/wiki/Grotto
A grotto is often a small cave such as the well-known apparitions of Our Lady of Lourdes to Bernadette Soubirous took place in a grotto, which is visited by many Catholics.

Numerous garden shrines are modeled after these apparitions, and can commonly be found displayed in gardens and Churches.


The following week was full of exciting events: at physical therapy, they stood David up and he was able to endure for 10 minutes.
At the front patio, David caught the ball in the air playing with Eddy and we all cheered.

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Sebastian and David.
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Sebastian and Alex
Cousin Alex brought David’s co-worker Sebastian to visit and it was great to witness his love and caring heart.
PictureJoy came to visit David.
Another special visit was Joy, Kimberly’s mom. As Joy was saying goodbye, David suddenly grabbed the Divine Mercy necklace she was wearing. She acknowledged he had given it to her and was amazed he had taken notice of it. How thrilling that David had experience another memory recurrence. Kimberly kissed him goodbye and unexpectedly he lifted his head and began sobbing. David was crying for the first time. We all cried and hugged. Another miracle. I stayed with him until he fell asleep. It was so hard to leave.

It had been a day full of emotions. Before heading to Aunt Flor’s house, I stopped at the grotto to pray. I offered up my pain and sufferings.

When we offer up our sufferings, God does wonders with our humble offering.


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Grotto to Our Lady of Fatima behind St. Michael the Archangel church on W. Flagler St. in Miami.
I offered my suffering for children in orphanages around the world. When I raised my eyes, a little girl was being lifted up by her father to kiss the statue of the Virgin of Fatima. It was as if I was witnessing my prayer being answered represented through the gesture of that father and daughter. A profound joy invaded my heart.
Our prayers are always heard. Thank you Lord for all the prayers answered – for those we see and for those we don’t see.

(Mark 11:24; Jeremiah 33:3; 2 Corinthians 1:3-4)

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Moving in the right direction.

3/2/2016

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I continued to keep a journal of every development in David’s daily routine. The withdrawal of medications can be challenging so; I knew documenting reactions and changes would be valuable.
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David was on 13 different medications to attend his respiratory and digestive system, for Parkinson and blood pressure, stimulants, depressants, muscle relaxants, anticoagulant, antibiotics, antacids and eye drops. All these were administered through the feeding tube. The concern of side effects and problems with the metabolism was always present. Some of the effects included hallucinations, agitation, confusion, nausea, seizures and restlessness. One of the medications with sedative properties was Baclofen to treat muscle spasms or spasticity. Spasticity is a muscle control disorder that is characterized by tight or stiff muscles and an inability to control those muscles (http://www.webmd.com/pain-management/pain-management-spasticity). A few possible side effects of Baclofen were drowsiness, dizziness and muscle weakness. I wondered how I would discern if David would be experiencing any of these effects because of the medications he was taking or because of the brain injury. I questioned if these medications would delay his mental alertness and cognitive improvement.

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David would take long naps during the day. We also learned that after a Traumatic brain injury, many injured sleep an unusually long amount of time as the brain is trying to heal from the injury. Sleep is important because it helps in the rehabilitation process. (http://www.traumaticbraininjury.net/sleep-disturbances-and-tbi/) During sleep, muscles and soft tissues heal, scar tissue develops and the brain and body recharge.
 
Proper sleep follows regular and predictable rhythm cycles. When we sleep, our brain sets down memories and refreshes various connections that allow it to work. Quality sleep helps us think more clearly, be more alert, and function at our best in all areas: mental, physical, and emotional. It is also possible, especially after a serious injury, that the brain’s electrical rhythms be disrupted. As the brain and body heal from injuries, sleep patterns may become more normal. (https://healthonline.washington.edu/document/health_online/pdf/Sleep_Problems_Brain_Injury_11_08.pdf)

When breakfast, lunch or dinner was delivered to the room, David would be wide-awake. We knew he had not lost his sense of smell. Because of his injury, David received his nutrition through a feeding tube because it was considered unsafe for him to consume anything orally. Brain injury frequently affects the skilled coordination of the nerves and 26 different muscles in the neck and esophagus that are used during the normal swallowing process.
Therapy is necessary to rebuild the patients’ swallowing ability. (http://calder.med.miami.edu/pointis/tbifam/swal2.html).

Once in a while we would hold a piece of ice so he could practice swallowing. I would roll the curtains so that he wouldn’t have to watch his roommates eat.

Great and new happenings occurred during the following week. David moved his right hand and foot, which had not been active at all. His Physical Therapist, Julissa took him to stand up for the first time. He became more vocal with the Aaaaaah. He worked on puzzles with Gaby and mimicked her by shaping his mouth to try and vocal the O. Sue and Alex came to visit and Tio Mayito and Tia Tere came from Puerto Rico to spend time with us.

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Tio Mayito visited from Puerto Rico.
We taught and prayed the Divine Mercy chaplet with his roommates Don Carlos and Stucky. He moved his tongue from side to side, which meant a step towards speech therapy and swallowing training. We were to expect a call regarding the removal of the tracheotomy tubes, which was the other important step on the way to eating real food. He had his first shower.
An important highlight that week was the visit of his barber Ziad who David always visited every two weeks. Zi gave him his first official haircut and spent time showing David some pictures of them together. It was great having him over.
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Zi came to give him a haircut.
One afternoon Eddie & Jorge spent the day with David and Ana Carolina kidnapped me for the day. We went grocery shopping and went to her apartment. She had me watching TV enjoying some sushi as an appetizer, while she cooked sirloin, mash, mac/cheese & asparagus. It was great.
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As we worked through the introduction of new experiences and the visit of loved ones, we looked forward to important events that would happen during the following weeks; especially the possibility of the tracheotomy removal, which was being seriously considered.

At the end of that week, I had a dream about the trach tube falling off. The next morning I found him with a new trach tube. It was as if we were especially connected. I prayed that removing the tube would be the next doctor’s orders. We would wait and see.
Waiting with patience and embracing the love of family and friends made our days joyful and peaceful. We knew we were moving in the right direction.
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(Psalm 143:8; Psalm 27:14; Romans 15:5)
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    Authors

    My son, David Arroyo  and I, Ana Curras, collaborate together. This is our story. Our story because we are connected. We all are. When you hurt, I hurt, when you succeed, I succeed, when you have joy, I do too. It's in our design as human beings. Our story is intended to give hope, joy, encouragement and light. We pray to be inspired by our Creator, guided by Jesus Christ, moved by the Holy Spirit and accompanied by our Mother Mary.
    We believe.

    NOTE: Bible verses referred to in each post are linked to open to the verses for your convenience.

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